About Rare Parenting

Rare Parenting Group, LLC

Rare Parenting provides parents of children with disabilities, rare diseases and special needs with evidence-based information for managing symptoms and care, as well expert advice for facing other life challenges—from finances to siblings to relationships.

Inspired by her son, a very disabled little boy with a rare neurological disease, CEO and editor-in-chief Megan Nolan founded Rare Parenting to support parents across diseases and disorders, knowing that kids often share similar experiences, regardless of their disorder.

The Rare Parenting vision is to create a home where parents can access support and relevant information that they can trust.

Our Editorial Policy

Our seasoned editorial team works with 20+ vetted professional journalists to create our articles. We define the content ideas and development strategy in-house, and then our team of writers begin work by heavily researching the topics, often interviewing doctors, experts and parents alike. We follow a strict weeks-long editorial process as the articles are created. Our articles are further fact-checked for accuracy, and any article related to health and wellness is also reviewed by our Medical Advisory Board. Our editorial goal is to provide content that parents can trust.

Our Sources

Rare Parenting follows a strict research policy for all articles related to health, science, and wellness. In addition to the conduction of interviews with doctors, experts, and parents, writers also source guidance from leading medical organizations and from peer-reviewed journals and research studies. Examples of sources include the U.S. American Academy of Pediatrics, American Physical Therapy Association, American Academy of Orthopaedic Surgeons, The American College of Obstetricians and Gynecologists, National Institutes of Health, Centers for Disease Control and Prevention, Social Security Administration, and others. At the bottom of each article you can find sourcing under the title, “References and Further Reading.”

Meet the Editorial Team

Megan Nolan

CEO, Editor-in-Chief, Rare Mom

Megan oversees all functions of Rare Parenting, to include the development and management of the editorial process. Megan concepts and edits Rare Parenting content, ensuring articles meet the needs of parents. Prior to Rare Parenting, Megan worked in marketing and advertising at Prada, Vogue, WhoWhatWear, and at top agencies where she worked closely with a number of prestigious brands including Chanel, Louis Vuitton, L'Oreal, Nike, Apple, and over 150 others. Megan lives in New York City with her husband and two children, one of whom has a rare neurodevlopmental disease called FOXG1 Syndrome.

Elizabeth Dougherty

Senior Editor

Elizabeth is responsible for managing and editing the work created by team of writers focused on health and lifestyle content. She works to further develop ideas and ensure content is accurate and follows Rare Parenting guidelines. With 30+ years experience in journalism and editing, Elizabeth has worked with, and/or regularly contributes to, Parenting, BabyCenter, Gymboree, Working Mother and Health Center. Elizabeth is a long-time resident of Silicon Valley, California.

Colleen de Bellefonds

Senior Health Editor

Colleen manages and edits the work created by a team of health and science writers, ensuring content is clear, accurate, and follows Rare Parenting guidelines. With more than 15 years of experience as an editor and journalist, Colleen has written for and/or regularly contributes to What To Expect, BabyCenter, The Bump, Women's Health, Healthline, SELF, Well+Good, WebMD, U.S. News & World Report, and others. Colleen is based in Paris, where she lives with her husband and two children.

Meet the Medical Board

Neurology

Craig A. Press, MD, PHD

Pediatric Neurologist

Attending physician in the Division of Neurology and Medical Director of the Neuroscience Unit at Children's Hospital of Philadelphia

Alison S. May, MD, ABPN

Pediatric Neurologist

Pediatric Neurologist and Assistant Professor of Neurology at Columbia University Irving Medical Center, Division of Child Neurology

Science & Genetics

Giorgio Sirugo, MD, PHD

Medical Genetics

Researcher and professor at the University of Pennsylvania School of Medicine, Case Western Reserve University School of Medicine, and the Italian Ministry of Education (MIUR); Investigator at Undiagnosed Diseases Network

Tanja Vogel, PHD

Scientist

Scientist and professor at the University of Freiburg, Germany, specializing in genetic disease

Miriam Figueira, PHD

Scientist

Rare Disease Scientific Consultant at Emily's Entourage

Sarah McKeown Ruggiero, MS, CGC

Genetic Counselor

Genetic counselor for Epilepsy Neurogenetics Initiative (ENGIN) and Genetic Counseling Leadership Education in Neurodevelopmental and Related Disabilities (LEND) fellow at Children's Hospital of Philadelphia

Orthopedics

Mara S. Karamitopoulos, MD, MPH, FAAOS

Pediatric Orthopedic Surgeon

Chief, Division of Pediatric Orthopedic Surgery at NYU Langone; clinical associate professor in the Department of Orthopedic Surgery at NYU Grossman School of Medicine

Therapy

Cassandra Ruff, PT, DPT, NCS

Physical Therapist

Physical Therapist at Rusk Rehab at NYU Langone Orthopedic Hospital, certified in Dynamic Movement Intervention

Rebecca Taskin, CCC-SLP, TSSLD, ATP

Speech-Language Pathologist

Speech & language pathologist, Assistive Technology Progressional, at Speech in the City

Courtney Martins, OTR/L

Occupational Therapist

Pediatric occupational therapist, private practice

Pediatrics

Jonathan Jassey, DO FAAP

Pediatrician

Founding pediatrician at Concierge Pediatrics in New York

Diet & Nutrition

Colleen Topper, MS RD

Pediatric Dietitian

Pediatric dietitian at Mount Sinai Hospital and at Children's Hospital at Montefiore

Meet the Expert Advisors

Psychology and Education

Yulika Forman, PhD, LMHC

Psychologist & Special Education Consultant

Psychotherapist, researcher and special education consultant, private practice, specializing in special needs

Kelley Yost Abrams, PhD

Psychologist

Developmental psychologist and child development specialist, private practice, specializing in parent-child relationships

Christopher Russell, M.S., Ed., TVI

Special Education Teacher

Special Education Teacher in the NYC Department of Education, Hospital Schools, specializing in sensory disabilities, deafblindess and visual impairment

Alexa Rein, MA

Behavior Interventionist & Mental Health Counselor

Neurodiversity specialist at Adelphi University and mental health counselor, private practice, specializing in special needs

Amanda Atkins, LMFT, PMHC, AAMFT

Marriage and Family Therapist

Marriage and family therapist, private practice, specializing in couples issues, grief and loss, and parenting children with disabilities

Child Life Services

Katie Taylor, CCLS

Child Life Specialist

CEO, Co-Founder of Child Life on Call digital app and podcast

Kelsey Mora, CCLS, LCPC

Child Life Specialist & Clinical Professional Counselor

Chief Clinical Officer of Pickles Group and child life counselor, private practice

Joy Nicolas, MA, CCLS, CIMI

Child Life Specialist

Child life specialist at Stanford Medicine, Children's Health

Financial Planning

Tanner Withers

Special Needs Financial Planner

CEO, Founder, Ability Planning

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