Rare Parenting provides parents of children with disabilities, rare diseases and special needs with evidence-based information for managing symptoms and care, as well expert advice for facing other life challenges—from finances to siblings to relationships.

Inspired by her son, a very disabled little boy with a rare neurological disease, CEO and editor-in-chief Megan Nolan founded Rare Parenting to support parents across diseases and disorders, knowing that kids often share similar experiences, regardless of their disorder.

The Rare Parenting vision is to create a home where parents can access support and relevant information that they can trust.

Our seasoned editorial team works with 20+ vetted professional journalists to create our articles. We define the content ideas and development strategy in-house, and then our team of writers begin work by heavily researching the topics, often interviewing doctors, experts and parents alike. We follow a strict weeks-long editorial process as the articles are created. Our articles are further fact-checked for accuracy, and any article related to health and wellness is also reviewed by our Medical Advisory Board. Our editorial goal is to provide content that parents can trust.

Rare Parenting follows a strict research policy for all articles related to health, science, and wellness. In addition to the conduction of interviews with doctors, experts, and parents, writers also source guidance from leading medical organizations and from peer-reviewed journals and research studies. Examples of sources include the U.S. American Academy of Pediatrics, American Physical Therapy Association, American Academy of Orthopaedic Surgeons, American Speech-Language-Hearing Association, The American College of Obstetricians and Gynecologists, National Institutes of Health, Centers for Disease Control and Prevention, Social Security Administration, and others. At the bottom of each article you can find sourcing under the title, “References and Further Reading.”