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Tethered Spinal Cord Syndrome and Surgery: What Parents Need to Know

A tethered spinal cord (or tethered spinal cord syndrome) is a developmental abnormality that occur...

How to Prevent and Manage Pneumonia in Kids with Complex Medical Needs

Many children with disabilities or complex medical needs are at an increased risk of pneumonia. Thi...

Apple and Android AAC Apps for Non-Speaking Kids

Communication is a major challenge facing children living with complex disabilities, contributing t...

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Welcome to Rare Parenting!

Rare Parenting is a medically-backed online publication for parents of children with disabilities, rare diseases, and complex medical needs. I'm Megan, the founder, and the mother of a child with severe disabilities. Along with a team of doctors, experts, and journalists, we bring scientifically driven guidance as you navigate caring for your child.

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