Rare Parenting Medical Advisory Board

The Rare Parenting advisory board of doctors and professionals ensures Rare Parenting offers the most accurate disability, rare disease, and complex needs related parenting information on the Web. Our advisory board members have been selected for their experience in their field.

Meet the Advisors

Neurology

Craig A. Press, MD, PHD

Pediatric Neurologist

Attending physician in the Division of Neurology and Medical Director of the Neuroscience Unit at Children's Hospital of Philadelphia

Alison S. May, MD, ABPN

Pediatric Neurologist

Pediatric Neurologist and Assistant Professor of Neurology at Columbia University Irving Medical Center, Division of Child Neurology

Science & Genetics

Giorgio Sirugo, MD, PHD

Medical Genetics

Researcher and professor at the University of Pennsylvania School of Medicine, Case Western Reserve University School of Medicine, and the Italian Ministry of Education (MIUR); Investigator at Undiagnosed Diseases Network

Tanja Vogel, PHD

Scientist

Scientist and professor at the University of Freiburg, Germany, specializing in genetic disease

Miriam Figueira, PHD

Scientist

Scientific research advisor, postdoc, University of North Carolina, Chapel Hill

Sarah McKeown Ruggiero, MS, CGC

Genetic Counselor

Genetic counselor for Epilepsy Neurogenetics Initiative (ENGIN) and Genetic Counseling Leadership Education in Neurodevelopmental and Related Disabilities (LEND) fellow at Children's Hospital of Philadelphia

Orthopedics

Mara S. Karamitopoulos, MD, MPH, FAAOS

Pediatric Orthopedic Surgeon

Chief, Division of Pediatric Orthopedic Surgery at NYU Langone; clinical associate professor in the Department of Orthopedic Surgery at NYU Grossman School of Medicine

Therapy

Cassandra Ruff, PT, DPT, NCS

Physical Therapist

Physical Therapist at Rusk Rehab at NYU Langone Orthopedic Hospital, certified in Dynamic Movement Intervention

Rebecca Taskin, CCC-SLP, TSSLD, ATP

Speech-Language Pathologist

Speech & language pathologist, Assistive Technology Progressional, at Speech in the City

Courtney Martins, OTR/L

Occupational Therapist

Pediatric occupational therapist, private practice

Pediatrics

Jonathan Jassey, DO FAAP

Pediatrician

Founding pediatrician at Concierge Pediatrics in New York

Diet & Nutrition

Colleen Topper, MS RD

Pediatric Dietitian

Pediatric dietitian at Mount Sinai Hospital and at Children's Hospital at Montefiore

Psychology and Education

Yulika Forman, PhD, LMHC

Psychologist & Special Education Consultant

Psychotherapist, researcher and special education consultant, private practice, specializing in special needs

Christopher Russell, M.S., Ed., TVI

Special Education Teacher

Special Education Teacher in the NYC Department of Education, Hospital Schools, specializing in sensory disabilities, deafblindess and visual impairment

Alexa Rein, MA

Behavior Interventionist & Mental Health Counselor

Neurodiversity specialist at Adelphi University and mental health counselor, private practice, specializing in special needs

Amanda Atkins, LMFT, PMHC, AAMFT

Marriage and Family Therapist

Marriage and family therapist, private practice, specializing in couples issues, grief and loss, and parenting children with disabilities

Child Life Services

Katie Taylor, CCLS

Child Life Specialist

CEO, Co-Founder of Child Life on Call digital app and podcast

Kelsey Mora, CCLS, LCPC

Child Life Specialist & Clinical Professional Counselor

Chief Clinical Officer of Pickles Group and child life counselor, private practice

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