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The Marfan Foundation’s Global Virtual Conference

Virtual Event

The Marfan Foundation’s Global Virtual Conference connects people living with genetic aortic and vascular conditions, their loved ones, healthcare providers, and researchers from around the world for a unique event that holistically explores the many facets of life with Marfan, Loeys-Dietz, VEDS, and related conditions. Topics include advancements in medical management, mental health and well-being, […]

North America Rare Disease Summit 2024

Radisson Blu Aqua Hotel, Chicago 221 N Columbus Dr, Chicago, IL 60601, United States, Chicago, United States

The second annual North America Rare Diseases Summit, hosted by Bamberg Health, will offer a unique forum for leaders in the field to share insights, breakthroughs, and strategies for advancing care and research. This event is designed to address the multifaceted challenges of rare diseases, highlighting innovative treatment approaches, diagnostic advancements, and the critical role […]

FOXG1 Syndrome Parents Conference 2024

Marriott Resort Fort Lauderdale Pompano Beach 1200 North Ocean Boulevard, Pompano Beach,, United States

The 2024 FOXG1 Syndrome Parents Conference will be held November 15th-17th, 2024 at the Marriott Resort Fort Lauderdale Pompano Beach. In this retreat setting, FOXG1 parents will connect with other FOXG1 parents, scientists, and leading FOXG1 clinicians to learn about the spectrum of FOXG1 syndrome, the FOXG1 research strategy towards a cure, and parenting children […]