Whether your child is tube-fed, bottle-fed, or eats solids, this collection of picture books will serve as a window into the “tubie life,” normalizing differences and promoting inclusion. Within this collection, you’ll find books that teach readers about how feeding tubes work and why some kids need them, while reminding readers that kids who use feeding tubes love to laugh, learn, and play, just like everyone else.
For more reading, don’t miss our other Rare Parenting Book Lists!
Meet Nico, a two-year-old boy in My Belly Has Two Buttons: A Tubie Story, who shares his experience with his feeding tube. Because of the placement of his MIC-KEY feeding tube “button,” Nico says that he has two belly buttons. Illustrations paired with Nico’s explanations show how the MIC-KEY works to give him the food he needs. The story completes with a great reminder from Nico, that even though he has a feeding tube, he still loves to run around and play.
The Abilities in Me: Tube Feeding, part of the Abilities in Me Series, features a young girl sharing her story of being tube-fed and describing what may cause feeding issues in children. She teaches the readers about the various nasal and gastro tubes she’s used and their buttons. The book also includes participation pages for children to write about their own special abilities, and to draw about what makes them happy.
In My Brother Has Two Belly Buttons, we see the perspective of a sibling. This younger brother views his older brother as Superman, who can eat at any time, even while sleeping. In the story, the younger brother proudly assists with the tube feedings, by helping to refill the feeding bag. The book also gives insight into the older brother’s anxiety around feeding by mouth.
Tubie Kids Like Me helps readers understand the experience of having a feeding tube from a child’s perspective. Written in rhyme and narrated by a young girl with a G-Tube, the story explains why children have feeding tubes, how tubes feel, and how children with feeding tubes eat. This sweet story reminds readers that children with feeding tubes can still move and play, just as they had done before their tubes were placed.
How We Eat, part of the We Are Little Feminists Board Book Collection, is an inclusive board book celebrating the many various ways families eat. Through photographs of kids and families, this book highlights different foods and eating methods, including three photos of babies and young children eating through NG and G-tubes. The book also offers family discussion questions, as well as an accompanying online guide with more information about the scenes featured on each page.
All children will love The Adventures of Team Super Tubie, a superhero adventure story featuring three brave “Super Tubies” who use their feeding tube superpowers to battle dragons, fight fires, and thwart evil bank thieves. Join Super Tubies Marcel the Brave Knight, Lola the Cowgirl, and Camden the Firefighter as they work together to save the day! This book includes representation of an F-Tube, an NG-Tube, and of TPN (Total Parenteral Nutrition).
Follow along in the life of a young girl with a G-Tube in My Tubey: A Day in the Life of a Tube Fed Girl. There is a second version of this book made for boys, My Tubey: A Day in the Life of a Tube Fed Boy. Written in rhyme, this short and simple story is a great introduction to feeding tubes and the reasons children need them. It includes feeding tube terms, such as stoma and bolus, and accurate illustrations of a feeding pump, tubing, and the bolus feeding sets.
Nigel’s NG Tube follows Nigel as he prepares for his feeding tube surgery to have his NG-Tube (Nasogastric Tube) inserted. Readers are shown how the tube is inserted and what happens during surgery, with illustrations. Nigel is very brave throughout the process, acting as an example for young readers.
Real Kids, Real Tubes: A My Tubey Photograph Book is inspired by a child who was born with severe pediatric GERD, which led to her being tube-fed until she was three years old. This book features over one hundred photographs of children with feeding tubes participating in a range of activities such as playing at the park, playing sports, dancing, splashing in water, and playing video games. The photos feature children from infancy through teen years, and they are a great demonstration of all the things children love to do, regardless of their condition!
Readers meet a little girl who has FOXG1 Syndrome in Joyfully Josie. Despite her many challenges, she remains positive and joyful. She can communicate using ‘Yes/No’ switch buttons to let her friends know she does want ice cream, which she enjoys through her feeding tube.
In Dancing with Daddy, we join an excited Elsie as she prepares for her first father-daughter dance. Elsie has Wolf-Hirschhorn syndrome, and at the family dinner scene, her father uses a syringe to feed her through her feeding tube. From choosing her dress for the dance, to practicing her dance moves in her wheelchair, Elsie communicates her excitement through gestures and the use of her PODD (Pragmatic Organisation Dynamic Display) communication device.