RARE Health Equity Forum

The RARE Health Equity Forum is a unique event focused on the intersection of rare disease and health equity, with an agenda centered on creating systemic and organizational change. The conference aims to address the persistent gaps in the rare disease community for underrepresented and marginalized patient populations, including those still seeking a diagnosis or unaffiliated with a disease-specific foundation.

Now in its fourth year, the theme is “Together in Equity, Driving Change.” Through plenary sessions, networking, and interactive table talks, the event empowers attendees with actionable tools and strategic insights to advocate for a more inclusive rare disease community. To register, visit the Global Genes website.