Welcome to our Community Calendar!

 

Raise awareness for your cause by adding your fundraiser, conference or meet up, or use the calendar to connect with like-minded families in your community.

Week in RARE

Loews Kansas City Hotel 1515 Wyandotte Street Kansas City, Kansas City, MO, United States

Global Genes is on the move—Week in RARE is moving to Kansas City, Missouri, in 2024. This event combines the RARE Health Equity Forum and RARE Advocacy Summit, along with the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. It offers a unique opportunity for […]

2024 RARE Advocacy Summit

Loews Kansas City Hotel 1515 Wyandotte Street Kansas City, Kansas City, MO, United States

Global Genes brings together rare disease patients, caregivers, advocates, healthcare professionals, researchers, and allies at the RARE Advocacy Summit to build a path to hope. This event is a great chance for both new and experienced advocates to connect and collaborate with others in the rare disease community. Sessions will offer insights into the latest […]

RARE Health Equity Forum

Loews Kansas City Hotel 1515 Wyandotte Street Kansas City, Kansas City, MO, United States

The RARE Health Equity Forum is a unique event focused on the intersection of rare disease and health equity, with an agenda centered on creating systemic and organizational change. The conference aims to address the persistent gaps in the rare disease community for underrepresented and marginalized patient populations, including those still seeking a diagnosis or […]