Welcome to our Community Calendar!

 

Raise awareness for your cause by adding your fundraiser, conference or meet up, or use the calendar to connect with like-minded families in your community.

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Serenely Guided Foundation @ WHOOP – Fundraiser

WHOOP Headquarters One Kenmore Square, Boston, United States +1 more

Join us for a Night of Giving at WHOOP Headquarters on July 25th. There will be cornhole team tickets of 2 available as well as networking tickets. Giveaways and gift bags will be offered as well as food and beverages served. All proceeds to benefit the Serenely Guided Foundation and Wearables for Caregivers.

2024 CMTA Patient & Research Summit

Denver Marriott West 1717 Denver West Marriott Blvd Golden, Denver, CO, United States

The 2024 CMTA Patient & Research Summit will be held from Friday, September 6th to Sunday, September 8th at the Denver Marriott West in Denver, Colorado. Attendees will enjoy presentations on living well with CMT and get an update on CMTA’s Strategy to Accelerate Research (STAR) programs, led by top researchers. Learn about managing CMT […]

NCCN 2024 Annual Congress: Hematologic Malignancies

New York Marriott Marquis 1535 Broadway, New York, NY 10036, United States, New York, NY, United States

The NCCN 2024 Annual Congress: Hematologic Malignancies, chaired by Dr. Andrew D. Zelenetz from Memorial Sloan Kettering Cancer Center, will feature presentations and discussions on treatment options and supportive care for various hematologic malignancies. This program is approved for AMA PRA Category 1 Credit™ and ABIM, ABPath, and ABMS MOC for physicians and is certified […]

Week in RARE

Loews Kansas City Hotel 1515 Wyandotte Street Kansas City, Kansas City, MO, United States

Global Genes is on the move—Week in RARE is moving to Kansas City, Missouri, in 2024. This event combines the RARE Health Equity Forum and RARE Advocacy Summit, along with the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. It offers a unique opportunity for […]

2024 RARE Advocacy Summit

Loews Kansas City Hotel 1515 Wyandotte Street Kansas City, Kansas City, MO, United States

Global Genes brings together rare disease patients, caregivers, advocates, healthcare professionals, researchers, and allies at the RARE Advocacy Summit to build a path to hope. This event is a great chance for both new and experienced advocates to connect and collaborate with others in the rare disease community. Sessions will offer insights into the latest […]

2nd Annual Pharma CX Oncology Summit

Nassau Inn, Princeton, NJ 10 Palmer Square W, Princeton, NJ, United States

The 2nd Annual Pharma CX Oncology Summit will bring together 25+ speakers and 125+ pharma marketing and CX leaders to explore how pharma can improve the oncology customer experience. Learn from leading pharma oncology brands about what they are doing to deliver better experiences for oncology patients and HCPs, while improving business outcomes.

RARE Health Equity Forum

Loews Kansas City Hotel 1515 Wyandotte Street Kansas City, Kansas City, MO, United States

The RARE Health Equity Forum is a unique event focused on the intersection of rare disease and health equity, with an agenda centered on creating systemic and organizational change. The conference aims to address the persistent gaps in the rare disease community for underrepresented and marginalized patient populations, including those still seeking a diagnosis or […]

Everybody In! Walk/Move for Perkins

Perkins School for the Blind 175 N Beacon St, Watertown, MA, United States

Join us on Saturday, October 5th, for a beautiful community event on the Perkins School for the Blind’s campus, through Watertown, MA’s Braille Trail and along the Charles River in support of children with disabilities and their families. Then, take part in a community celebration at the finish line, with food trucks, a petting zoo […]

Propionic Acidemia Family Education Conference

The Community Health Clinic 730 East North Street, Shipshewana, IN, United States

Hosted by the Propionic Acidemia Foundation and The Community Health Clinic, this conference is dedicated to finding better treatments and a cure for Propionic Acidemia. The Propionic Acidemia Foundation supports this mission by funding research and providing vital information and support to families and medical professionals.

4th Annual Butterfly Gala

Crest Hollow Country Club 8325 Jericho Turnpike, Woodbury, NY, United States

The Butterfly Gala is an annual fundraising event to raise awareness and funds for pediatric cancer Rhabdomyosarcoma research, provide financial assistance for families while their children are undergoing treatment and provide memorial support for children who have sadly passed away from cancer. Early Bird prices are $175 per ticket. Prices will increase to $200 per […]

Get Tickets $175.00 200 tickets left

EU World Orphan Drug Congress 2024

Fira de Barcelona Av. de la Reina Maria Cristina, s/n, Sants-Montjuïc, Barcelona, Catalonia, Spain

The World Orphan Drug Congress is the largest and most established global meeting focused on orphan drugs and rare diseases. It covers topics such as cell and gene therapy, genetic testing, market access, real-world evidence, and orphan drug policy. With over 130 leading solution providers from around the world, the congress showcases new ways of […]

Advanced Therapies USA 2024

Pennsylvania Convention Center 1101 Arch Street, Philadelphia, PA, United States

The Advanced Therapies Congress will feature speakers from across the entire value chain of cell and gene therapy development, offering 8 tracks of content over 2 days. Attendees can engage with 50 leading solution providers to support all stages of cell and gene therapy development. Additionally, there will be opportunities to connect with thousands of […]