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2024 RARE Advocacy Summit

Global Genes brings together rare disease patients, caregivers, advocates, healthcare professionals, researchers, and allies at the RARE Advocacy Summit to build a path to hope. This event is a great chance for both new and experienced advocates to connect and collaborate with others in the rare disease community. Sessions will offer insights into the latest rare disease innovations, best practices for advocacy, and practical strategies to improve care and drive change. This year, the Summit will be held in Kansas City, Missouri. To register, visit the Global Genes website.
