Welcome to our Community Calendar!

 

Raise awareness for your cause by adding your fundraiser, conference or meet up, or use the calendar to connect with like-minded families in your community.

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    Latest Past Events

    World Orphan Drug Congress USA 2025

    Boston Convention & Exhibition Center 415 Summer Street, Boston

    The World Orphan Drug Congress brings together leaders from pharmaceutical and biotech companies, government and regulatory authorities, patient advocacy groups, payers, investors, and solution providers. This conference serves as a platform to discuss advancements in orphan drug development and enhance access to life-saving therapies for individuals with rare diseases. Attendees can look forward to a […]

    38th Annual MPS Family and Scientific Conference

    Hilton Orlando Lake Buena Vista 1751 Hotel Plaza Boulevard, Lake Buena Vista

    Join the National MPS Society for their 38th Annual Family and Scientific Conference as they celebrate 50 years! This milestone event will feature speakers from across the country addressing the latest in science, research, and care management for mucopolysaccharidoses (MPS) and mucolipidoses (ML). Families can enjoy creating memories together in the vibrant setting of Orlando, […]

    American Epilepsy Society (AES) 2024 Annual Meeting

    Los Angeles Convention Center 1201 S Figueroa Street, Los Angeles

    The AES Annual Meeting stands as the foremost gathering for healthcare providers, scientists, advocates, industry professionals, and others committed to improving outcomes for individuals with epilepsy. This event features five days of exceptional live educational content, cutting-edge scientific advancements, the latest tools and technologies, and a unique atmosphere of energy and community unparalleled in its […]