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RARE Storytelling Workshop

July 16 @ 12:00 pm - 1:00 pm EDT

The RARE Storytelling Workshop invites individuals with rare diseases and their families to learn how to craft their narratives and raise awareness about specific conditions and the broader rare disease community. Participants will discover how to inspire others, share the patient voice, drive new research, and advocate for better healthcare policies. This event covers various media for storytelling, including blogs, podcasts, and in-person presentations, with expert presenters from Courageous Parents Network, EveryLife Foundation, and The Mighty. To register, visit the Global Genes website.


July 16
12:00 pm - 1:00 pm EDT
Event Category:
Virtual Conference
Event Tags:
All Diseases


Global Genes
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